WHO ICTRP trial
PFBC-Registry "Fahr-NET": Registry study for clinical and genetic…
DRKS00037946 · German Clinical Trials Register · Recruiting
Key facts
| Trial ID | DRKS00037946 |
|---|---|
| Public title | PFBC-Registry "Fahr-NET": Registry study for clinical and genetic characterization, biomarker development, and establishment of a cohort for future clinical therapy development. |
| Scientific title | PFBC-Registry "Fahr-NET": Registry study for clinical and genetic characterization, biomarker development, and establishment of a cohort for future clinical therapy development. - PFBC-Registry "Fahr-NET" |
| Primary sponsor | Klinik für Neurologie der Universitätsklinik Ulm (RKU Ulm) |
| Registry | German Clinical Trials Register |
| Recruitment status | Recruiting |
| Study type | observational |
| Countries | Germany |
| Conditions | PFBC (synonyms Fahr disease, PBGC, symmetric basal ganglia calcification, etc.) ORPHA:1980 |
| Interventions | Group 1: Patients diagnosed with PFBC (synonym Fahr's disease, PBGC, symmetric basal ganglia calcification, etc.) undergo a neurological examination every 12 months (i.e., T1 + all follow-up examinations). In order to objectively evaluate… |
| Registration date | Sep 29, 2025 |
| Target size | 60 |
| Secondary IDs | 125/25 |
| Registry page | drks.de |
At a glance
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Source: World Health Organization (WHO), International Clinical Trials Registry Platform (ICTRP) · Source date: