Clinical trial
Myotonic Dystrophy and Facioscapulohumeral Muscular Dystrophy Registry
NCT00082108 · University of Rochester, Other · Recruiting
Key facts
| NCT number | NCT00082108 |
|---|---|
| Title | Myotonic Dystrophy and Facioscapulohumeral Muscular Dystrophy Registry |
| Official title | National Registry of Myotonic Dystrophy and Facioscapulohumeral Muscular Dystrophy Patients and Family Members |
| Lead sponsor | University of Rochester, Other |
| Collaborators | National Institute of Neurological Disorders and Stroke (NINDS) NIH |
| Status | Recruiting |
| Study type | Observational |
| Conditions | Myotonic Dystrophy, Facioscapulohumeral Muscular Dystrophy, Muscular Dystrophy, Myotonic Dystrophy Type 1, Myotonic Dystrophy Type 2, Congenital Myotonic Dystrophy, PROMM (Proximal Myotonic Myopathy), Steinert's Disease, Myotonic Muscular Dystrophy |
| Enrollment | 3,000 |
| Start date | Sep 1, 2000 |
| Primary completion | Jun 1, 2028 |
| Completion | Jun 1, 2028 |
| First posted | Apr 30, 2004 |
| Last update posted | Oct 15, 2025 |
| Countries | United States |
At a glance
- 1–9 Study sites
- No Results posted
- 1–9 FDA inspections linked to this trial
- None Linked FDA submissions
Counts are shown as ranges. Exact figures, trends and every underlying record are available in Orca1.
About ClinicalTrials.gov studies
ClinicalTrials.gov is the U.S. National Library of Medicine's registry of clinical studies conducted around the world. Contact and investigator details are not shown here.
Source: U.S. National Library of Medicine (NLM), ClinicalTrials.gov · Source date: